Monday, March 16, 2009

PET Scan Update

Well, we finally heard back from Dr. Esquivel this afternoon. As many other times in this journey, we did not get the news we were hoping for. Basically, Dr. Esquivel said besides doing more chemo, there is not much else to do. To us, it sounded like, "just wait for the inevitable to happen." He does not believe that a surgery would be curative, as he does not believe he would be able to get everything. And, he confirmed what we have always been told, chemo will not kill this cancer, just keep it at bay for awhile.

So, according to his recommendation, it is either more chemo, or nothing.

Not being satisfied with either of those choices, we are in the process of getting some more opinions. One thing we have become a strong advocate for.

We will be contacting Dr. Loggie, a specialist in Omaha, NE that we met with before, and who at one point thought surgery would be helpful, but just not necessary when we met with him (which was in Dec 07). So we will meet with him again to see if his opinion has changed.

I have also made an appointment (March 30th) to see another medical oncologist who has experience with this disease. While my oncologist has been treating me for over 5 years, he still relies often on the opinion of the surgeons that we meet with, so it would be good to see what another oncologist would have to say about my situation.

And there you have it. Another bump on this road that we have been diverted on to. Is it scary? Heck ya. Being told that there is really nothing that can be done is frightening. Your mind starts racing towards the worst possible outcome, even though in reality, none of us know what the future holds.

Maybe it's not knowing what the future holds that is scary. Maybe it's that we have no control of what the future holds that is scary. Maybe it's that the future has a possibility of creeping up on us faster than we want.

Maybe it's a little bit of all three.

I'll post again when we get more information.

8 comments:

  1. God bless you Kevin, more prayers coming your way. It's a great idea to get more opinions.

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  2. Hey Kev,

    Keep up the fight, we all know the docs are pleasantly surprised all the time when their patients rally again and again. As you know, they're smart guys (& gals) but they don't have all the answers.

    One of these days we've GOT to do a Finger Lake run. I still have the old '00 FXST and it's still runnin' good. Better than me, in fact, and twice as pretty. Maybe prettier.

    Take care and keep us posted.

    Snapper Dave

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  3. Hey Bro! I will bring my many years at the Salvation Army to shed some thoughts and prayers and positive energy. Hell bro we have to ride together like the old days. I am with ya bro. :-)

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  4. Hi Kev,
    I haven't talked to you in a long time, so you probably don't remember me. I just wanted to let you know I am saying a lot of prayers. I wish their were a cure for cancer. Keep strong, keep fighting.
    Carrie (Rebelion, motorcycles)

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  5. Hi Kevin -
    Thanks for keeping us updated. I'm sorry for the recent news, although seeing Dr. Loggie again should provide more support and possibly new directions. You and Roni visited my husband Chris after his MOAS at WHC in May of '07. We remember you both so fondly for your generosity and good cheer.

    Prayers and good wishes coming to you from Illinois.

    Linda (and Chris) Kimball

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  6. Hi Kevein,

    I had no idea you had been sick! You may remember me and my family from a long time ago at CBY...the Australian family that we around for a year.

    Any way my prayers and thoughts are with you and I assume I will see you at Alana and Justice's wedding on the 31st of may!

    Much Love
    Goldele Rayment

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  7. Thanks for the update. This has to be frustrating. We'll continue to pray that you get hooked up the right expert.

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  8. Kevin,
    My thoughts and prayers are with you. As long as you have breath, you have a chance.... knowing that the bumps are there is probably every bit as difficult as being blithely unaware of them....

    You are doing such a wonderful job with the grace under pressure. I admire your fortitude, and that of your wife, and family.

    RJ2112

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